Even when I’m feeling fine (ish) these days, there are still the little indignities that come with cancer and chemo that add up to feel like A BIG THING instead of a lot of little things.
-Waking up to pee four times a night.
-Still can’t sleep comfortably on either side because – incision on left, port on right.
-Have to wear a hat to sleep because my scalp/hair rubs weirdly on my pillow.
-Waking up in a drenching sweat because of the above hat/chemo sweats.
-Still sleeping in a bra, almost three months after surgery.
-Not being able to bathe. Sure, I shower everyday but there’s something about a long soak in a hot bath that makes me feel so good and I haven’t been able to do that in almost three months thanks to the open wound my incision became.
-Still having to shave my stupid legs even though I have no hair on the top of my head. How is that fair and just?
-The weird film/taste in my mouth that is a near constant state. It’s not metallic like some people told me it would be but I can’t seem to drink enough water(see having to get up four times a night to pee) or brush my teeth often enough to get rid of it.
So many little things. But I know they'll be worth enduring. Every single day is a day closer to when this is all over and I'm taking steps to leaving it all behind me, getting well, feeling well, being well.
A mom, a dad and two daughters. We're living ordinary lives with a twist of 5p- (Cri du Chat) for spice. But we're about so much more than our younger daughter's genetic diagnosis.
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