Thursday, December 3, 2015


When Olivia was a baby, she had a wonky eye. It was the right one. Whenever she was tired, her eye would ‘wander’ about in its socket, sometimes heading left, sometimes heading right. Mostly, it drifted right.

You couldn’t see the wonk often in real-time but we did capture it in pictures quite often. It was disconcerting to notice it in pictures when I hadn’t noticed it in the moment.

When she was diagnosed with 5p- syndrome, I mentioned the wonky eye and her developmental pediatrician referred us to IU Ophthalmology.

Olivia only went once. They declared her eyes to be healthy and said that the ‘wonkiness’ was just a sign of muscle weakness and since it was really only evident when she was tired, there wasn’t much we could do.

So we did nothing.

She started wearing glasses a year ago in September. At her first appointment, her doctor didn’t even notice any wonkiness.

At her appointment this year, I mentioned that she’d taught herself to cross her eyes. I told the doctor that she’d had to work REALLY hard to do this. It absolutely didn’t come naturally to her.

He applauded her work ethic and said that being able to cross her eyes was actually a sign that the muscles in O’s eyes were getting stronger. He told her to keep working on those muscles.

This is one of those times when you won’t hear a mom (me) telling her child to stop making weird faces. She and I cross our eyes at each other often, just to prove we can.

This child of mine, she never ceases to amaze me. What we all

Crossed eyes and all, she’s so beautiful.

1 comment:

Julie said...

Now it's just Nyle that I see with a wonky eye.

Also, I read a blog about a mom whose daughter had seizures starting when she was about 3. The mom was looking back at some older pictures and realized her daughter was actually seizing in one of the pictures she had taken, she just didn't know it at the time. She was heart broken to think her daughter had needed medical intervention and she was just snapping pictures.

O is once again amazing and living proof that statistics can be liars. :)